“Together for life” has held today the second training session for the network of patient NGOs related to the recognition of patients’ legal rights.
Present at this event were representatives from the Association of Patients with Diabetes, Europa Donna Albania, Sue Ryder Albania, the Association of Hemodialysis Patients, representatives from the Association of Hepatitis Patients, as well as other interested persons.
Ledia Muraku, eksperte ligjore, shpjegoi për të pranishmit të gjitha hapat dhe procedurat ligjore që duhen ndjekur në rast konstatimi të shkeljes së të drejtave të tyre, duke iu drejtuar tri institucioneve përkatëse, si ai i Avokatit të Popullit, Komisioneri për Mbrojtjen nga Diskriminimi dhe Institucionet Gjyqësore, ndërkohë që solli shembuj suksesi të ndjekjes së këtyre rasteve.
“Avokatit të Popullit, mund t’i drejtohemi me anë të një kërkese në çdo rast shkelje të të drejtave tona, neglizhencë ose keqveprim të institucioneve shtetërore, ose nëse jeni viktimë e një padrejtësie. Mund t’i drejtohemi si individ ose si grup individësh, ajo që duhet marrë parasysh është kërkesa e cila duhet të jetë e mirëpërcaktuar dhe jo anonime’’, informoi Ledia Muraku.
The People’s Advocate has only a recommendation target and only on state institutions.
You can only contact the Commissioner for Protection against Discrimination on issues such as: discrimination or unequal treatment in a hospital service. You can address them as a single individual, as a group of individuals, or as an organization of legitimate interest. Unlike the People’s Advocate, in addition to public institutions, you can also turn to private institutions.
Gjykata është hallka tjetër në të cilën çdo qytetar mund të drejtohet në rast se ndaj tij është bërë mjekim i pa kujdesshëm apo nuk u është dhënë ndihma e nevojshme. Me shqyrtimin e rastit nga Gjykata, dhe në rast se qytetari fiton gjyqin penal, ka të drejtën e dëmshpërblimit”, shtoi ajo.
Alma Sheme, përfaqësuese nga Shoqata e Pacienteve me Hemodializë ngriti problemin e çështjes së transportit për pacientët me hemodializë, ku theksoi se aktualisht janë 70 persona që nuk marrin rimbursimin e transportit.
“We have set up a commission within the directorate of QSUT for this issue, but we did not find a solution. We sent it to the minister of that time, Ilir Beqaj, we did not receive an answer. There are currently 70 patients who do not receive reimbursement, what should I do in this case ?! ”
For her part, the legal representative Ledia Muraku stressed that we should not give up in these cases. We have the institution of the People’s Advocate, we have the Court, to whom we can turn and constantly urge them for our requests “.
Ndërkohë që përfaqësuesja e Shoqatës së Pacientëve me Diabet, Suela Kapedani, duke kërkuar zgjidhje, ngriti çështjen e rimbursimit të fishave për pacientët e rinj me diabet, ku theksoi se pavarësisht se për këtë është miratuar një fond i posaçëm, ende nuk është vënë në zbatim.
Another issue of interest during the discussion was the law on kidney transplantation, where Ardiana Çapi, representative of the Association of Pharmacists, stressed that this is a very sensitive issue that must be seen.
“Currently in Albania, according to the law on kidney transplantation, a person can become a donor only for his family circle. What about those people who do not have relatives, are orphans or abandoned, what happens in this case ?! That is why I put the emphasis on Eurotransplant, for a kidney to be donated not only by family members, but also from abroad.
A question of interest in the focus of the participants was also the role of the mediator institution, where the participants addressed the legal expert, Mrs. Muraku, if they can bring these issues to a solution in this institution.
Mrs. Muraku explained that the mediator is a private entity, which increases costs as it has to be paid. He simply reaches an agreement between the two parties, signing a drafting contract, and does not solve the problem between them.
At the end of this training, the representatives of “Together for life” expressed their willingness to support the strengthening of the voice of patients, while emphasizing that such training will continue in the future. Shendeti.com.al
